Rare Genomics Institute Announces 30-Day Crowdfunding Bootcamp for Rare Diseases Research & Treatment; Industry Partners include CrowdRise, Indiegogo Life & YouCaring
“Rare Genomics Institute has helped many affected families by putting them in touch with the World’s top rare disease and genomics specialists,” said Jimmy Lin, MD, PhD, MHS, President of the Rare Genomics Institute. “However, expert opinion is sometimes not enough: proper diagnosis requires sophisticated genome sequencing and other research, often on the brink of human knowledge. The reality is that such projects are very costly. That is why, in addition to global scientific expertise, we will be involving top fundraising experts and provide hands-on coaching that was not possible before. I am excited to see how the Amplify Hope Initiative will help families raise much-needed funds to uncover the cause of their child’s illness.”
The program will train families how to understand available fundraising platforms, plot campaigns, reach out to their networks and leverage social media more effectively with eye-catching images and videos. Fundraising experts will be conducting free webinars and offering remote support to showcase most effective email templates and messaging strategies.
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Reg A - Form 1-A Filings Beta
Beta. Initial Form 1-A only. Target raise is the stated Amount to be Raised, totaled. Compared with the same dates one year earlier.
YTD: Jan 1, 2026 - Oct 23, 2026 vs Jan 1, 2025 - Oct 23, 2025
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Number of Filings131Prior 125 +4.8%
Target Raise, Total$3.40BPrior $3.54B -3.9%
This YTD
Year prior
Change
Filings
131
125
+4.8%
Target raise
$3.40B
$3.54B
-3.9%
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Washington D.C.-based Rare Genomics Institute today announced a 30-day Crowdfunding Bootcamp to help rare disease patients raise funds for high-end exome sequencing to pinpoint the cause of their disease and map possible treatments. The training session is an integral part of Amplify Hope, a new RG program that navigates patients and their families through the emerging fundraising opportunities. The project, funded by the Templeton Foundation, is free for the participants.“Rare Genomics Institute has helped many affected families by putting them in touch with the World’s top rare disease and genomics specialists,” said Jimmy Lin, MD, PhD, MHS, President of the Rare Genomics Institute. “However, expert opinion is sometimes not enough: proper diagnosis requires sophisticated genome sequencing and other research, often on the brink of human knowledge. The reality is that such projects are very costly. That is why, in addition to global scientific expertise, we will be involving top fundraising experts and provide hands-on coaching that was not possible before. I am excited to see how the Amplify Hope Initiative will help families raise much-needed funds to uncover the cause of their child’s illness.”
